Utah Food Allergy Network (UFAN)

University of Utah/Primary Children’s Hospital named “Center of Excellence” for Food Allergy Research & Education (FARE) Clinical Network

Utah Food Allergy Network (UFAN) is elated to announce that the University of Utah and Primary Children’s Hospital was named a new center in the FARE Food Allergy Clinical Network this week! UFAN advocated for the hospitals to be added to the newly formed clinical network last year in hopes that people in Utah and the surrounding Intermountain Region would have access to current research and emerging therapies.

“We are excited that the University of Utah and Primary Children’s Hospital center was accepted as one of the new centers in the Food Allergy Clinical Network.  Food allergies are part of a growing epidemic, and this new network will allow us to better understand the causes of food allergies and be involved in designing and implementing new therapies in this field,” stated Rafael Firszt, MD, assistant professor, department of Pediatrics at the University of Utah and director of the clinic. “Much effort went into the application process, and we believe that this network will play a vital role in our patients accessing quality medical care in our community. We look forward to growing our relationship with FARE and with our local food allergy community.”

Read the entire Press Release

UFAN serves as a bridge, providing a network of communication between physicians, practitioners, agencies and the food allergy community. UFAN’s mission is to provide outreach to the newly diagnosed and the community at large by offering support, promoting education, building awareness of the severity of food allergies and anaphylaxis, and advocating for positive change.

Summer Conference Agendas & Speakers – Register Today!

We are excited to announce the 6th annual Utah Food Allergy Conference Summer Education Series focusing on food allergies to be held Saturday, July 30, 2016 in the Doty Family Education Center at Intermountain Medical Center in Murray, Utah. Check out the classes and speakers that are sure to provide an invaluable educational experience while you network with others! Learn from experts, connect with others, and become strengthened by the food allergy community! #UFANcon

Agenda
9:30am   Check-in & Networking
ADULTS
10:00-10:20am   Welcome – UFAN Board of Directors
10:20-10:50am    Food Allergy Research Update –  Dr. Viera-Hutchins
10:50-11:00am     Q&A
11:00-11:15am      Break
11:15-12:00pm     School Advocacy and 504 Plans – Virginia Wilson-Cobble, USDE-OCR
                                 OR  Informal Support & Social Networking – Celeste Janssen, UFAN Education Director
TEENS (ages 11-18)
10:00-10:20am   Welcome with Adults
10:20-10:40am   Teen Introductions and Game
10:40-11:00am    Social Situations
11:00-11:15am      Break
11:15-11:30am      Q&A
11:30-12:00pm    Chef Cards

[*Fall Education Series date TBD at the University of Utah Health Sciences Building with a focus on Eosinophilic Gastrointestinal Disorders.]

Eventbrite - Utah Food Allergy Summer Conference 2016

 GUEST SPEAKERS

Loida Viera-Hutchins, M.D.

 

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Virginia Wilson-Cobble

 

 

 

 

 

 

THANK YOU!

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This project was made possible through a community grant from Food Allergy Research and Education (FARE).

Heartfelt Thanks to Departing UFAN Founder and President, Michelle Fogg

Heartfelt Thanks to Departing UFAN Founder and President, Michelle Fogg

Friday, July 1, 2016 (SALT LAKE CITY, UTAH) Please join us in wishing Michelle Fogg, the founder of Utah Food Allergy Network (UFAN), the very best in her resignation as President after a decade of service.  

Michelle’s dedication, passion, and hard work have helped countless individuals navigate life with food allergies.  She obtained UFAN’s 501(c)3 nonprofit designation and has planned and managed numerous community events including UFAN’s Food Allergy Education Conferences, Easter Egg Hunt, Trunk or Treat, and Kids’ Summer Day Camp. She has also served as Chair/Co-Chair of the FARE Walk for Food Allergy in Salt Lake City multiple times.

A true believer in collaboration, Michelle has united parents, patients, physicians, school nurses, community agencies, and schools. She has provided mentorship for support group leaders at home and abroad while serving on numerous state and national boards–allowing for excellent partnering and establishing credibility of the UFAN organization. Michelle has also been long known for her passionate commitment to advocacy work, including lobbying and obtaining sponsorship for state and national laws.  

Under her leadership, UFAN has grown to over 1,000 members and followers who work together to advance common goals.  Michelle has provided training to many, including the Utah School Nurses Association, and co-created an online community education program, approved by the Utah Department of Health, which provides epinephrine training to individuals across the country.  

UFAN members have been greatly blessed to have Michelle in their midst to bring about this wonderful organization.  Michelle will remain a strong advocate for those with food allergies and eosinophilic disorders, and will continue to support UFAN’s efforts and provide vision as she joins our Advisory Board. UFAN cannot say enough good things about Michelle and express our deepest gratitude for the strong foundation she has provided us.

UFAN welcomes Julie Alverson as the new President of the Board of Directors and Melissa Sauter as Executive Director. Julie has served on the Board in multiple positions and as Volunteer Program Manager for nine years. She is intimately familiar with UFAN’s mission and membership and her volunteerism has demonstrated her dedication to serving the food allergy community. Melissa Sauter joined the UFAN Board of Directors last year and has a solid foundation of food allergies and eosinophilic disorders. She is an amazing advocate and passionate about UFAN’s programs and initiatives. Melissa will work with the Board and provide direct oversight for committees and services.

UFAN has strong leadership in place which will continue to carry our mission forward, and as always, we look to our members for additional volunteers and strengths as we network to serve the food allergic community of Utah. We look forward to a very bright future!

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APFED appoints UFAN a National Eosinophil Awareness Week Partner

APFED appoints UFAN a National Eosinophil Awareness Week Partner

UFAN’s Division of Eosinophilic Support (DOES) is proud to be an official National Eosinophil Awareness Week Partner with the American Partnership for Eosinophilic Disorders (APFED).

“APFED is a national organization for those who suffer from eosinophilic disorders,” says Michelle Fogg, President of UFAN. “We’ve used their website and resources personally and professionally for years, so we’re so happy that they want to partner with our organization.”

National Eosinophil Awareness Week runs from May 15-21, 2016. By becoming a partner, UFAN pledges to use this time to educate others about these rare, chronic allergic diseases.

“Not only do my son and daughter suffer from this disease,” says Tammy Zundell, President of UFAN DOES, “but many Utahns are affected by this disease. I’ve been working in support groups even before DOES was created and the need for awareness and support is great. Utah is ahead of many states in the fact that we offer in-person support meetings and educational conferences, as well as online support.”

In order to really capitalize on this special week, UFAN also held an art contest where those who suffer from food allergies, and/or eosinophilic disorders could creatively express what this year’s theme, “React with Respect”, meant to them.

UFAN DOES plans to continue to share information and shed light on this disease throughout the week on their social media channels. Please join us in lending your voice, and sharing your own experiences with this disease. You can follow them, and comment on their multiple channels:

To learn more, or to become involved, please email does@utahfoodallergy.org

“We’re grateful for the wonderful awareness and groundwork APFED has laid for our eosinophilic community, and we hope that we can build off of that and continue to grow resources for those in our local area that suffer,” said Zundel.

Primary Children’s Hospital Opens FED Clinic for Food Allergies & Eosinophilic GI Disoders

Primary Children’s Hospital Opens FED Clinic

We couldn’t be more thrilled to announce that the joint Allergy-GI-Nutrition clinic at PCH opens today, May 17th, 2016! It is called the FED Clinic (Food Allergies & Eosinophilic GI Disorders Clinic), though people will often refer to it as the EoE or EGID clinic. The FED Clinic will operate every Tuesday afternoon at Primary Children’s Hospital Eccles Outpatient Center. The core staff will be Dr. Jake Robson and Dr. Molly O’Gorman (GI), Dr. Rafael Firszt (Allergy), Tina McGrew (Nutrition, Allergy Focus), and Dr. Laura Bennett Murphy (Psychology).

The main goal of the FED Clinic is to provide longitudinal care for children in the Intermountain Region with eosinophilic GI disorders. A secondary goal of this clinic is to enter patients into a longitudinal database, to track symptoms, markers of disease activity, endoscopic findings, and response to treatment.

The FED Clinic can be reached at 801-213-3599 and is open to referral of patients, including:

  1. those with high concern for EGID without a formal diagnosis,
  2. those with an EGID diagnosis with complex/refractory disease,
  3. those with an EGID diagnosis in need of coordination of care to present a unified front to patient/family in a single visit

UFAN applauds the many physicians, patients, families, and advocates who have been asking for and making this wish a reality for over three years! Thank you to Primary Children’s Hospital and University of Utah Health Care for responding to the voice and needs of the community. We look forward to championing the new FED Clinic and supporting the efforts of excellent coordinated care and novel research initiatives.

Winners Announced in UFAN Art Contest!

We were thrilled to receive your wonderful art contest entries! Thank you to everyone that entered our awareness week art contest themed “React with Respect”. You are so talented and really helped to raise food allergy and eosinophilic disease awareness. Here are our featured winners who each win a $25 gift card!

2016 Art Contest: Food Allergy and Eosinophilic Awareness Weeks

UFAN is excited to announce our Art Contest for Food Allergy and Eosinophilic Awareness Weeks! Get your creative juices flowing with this year’s theme, React with Respect.

We encourage submissions about how you or others React with Respect in regards to bullying, reactions, epinephrine, the seriousness of food allergies, dealing with differences, feeding tubes, etc. Submissions can be a poem, essay, fictional story, painting, drawing or any other creative work of your choice.

Please find the official rules and entry form below and we are excited to see your amazing talents!

For more ideas on how you can get involved during the awareness weeks, visit Food Allergy Research and Education, American Partnership for Eosinophilic Disorders, and Campaign Urging Research for Eosinophilic Disorders.

UFAN 2016 Art Contest: ENTRY FORM & RULES

UFAN Awareness Week Art Contest 2016-page-001